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May 6, 2026 · NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Join NORD on Rare Disease Day! Discover impactful sessions, engaging speakers, and community events. Raise awareness, foster connections, and make a difference. Be a part of the rare disease …
Mar 24, 2026 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. For more than 37 years, NORD has led the way in voicing the …
Apr 15, 2026 · That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the …
Patient Assistance Programs that can help patients afforddrugs, offer medical assistance, and help pay medical bills.
Apr 21, 2025 · Health care professionals and researchers across the 40 NORD Rare Disease Centers of Excellence have come together to curate a group of 20, 30-60 minute lectures covering an …
Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.
The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.
Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. We provide …
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